Wednesday, December 17, 2008

Secret Santa

The other night we came home to a nice surprise on our front doorstep. Thank you to whoever left the yummy treats and fun stuff. It really made our night. The peanut brittle is seriously the best. Thanks for such a fun surprise!!!

Just an update on Finn. He went in today for another EEG to see how the Prednisone is helping. It turns out it has maybe helped about 10%. The doctor was a little disappointed and was hoping for a miracle. We are not really sure what to think. He wants us to come in and meet with him on the 23rd. We are grateful for all of your prayers.

Friday, December 5, 2008

Sorry again to take a little blogging break. The last month has flown by. We are excited the Christmas season is upon us and even went to the Nutcracker for the second time this year last night. We really enjoy the version at the Capitol Theatre, the scenery is amazing as well as the dancers. Turns out Jeni was even in the Nutcracker a few years back.

The past couple weeks have been hard as we have seen Finn start to develop some cognitive problems. As we talked to his doctor Wed night he wanted Finn to go in for an EEG yesterday to see if this was a result of his medicine (which can cloud his cognitive abilities) or because of the constant seizure activity. Thankfully, he was able to fall asleep really fast so we were only there about 2 1/2 hours. Late last night after the Nutcracker Dr. Thompson called with discouraging news. It looks like after all this time on these heavy meds he is still having constant seizure activity. Our next step is to start high doses of steriods and repeat the EEG next week. Unfortunately, he can't be around sick people and most of our family is sick at this point. So instead of starting today we have to wait until Monday and hope we are all better. Today we will go in and Finn will be tested by the Occupational Therapist to see if he can get help through the school.

On Sunday, for those that are willing we are going to be doing a fast for Finn. The longer this goes on the more brain damage he is incurring and we don't want to lose our sweet Finn. We have already seen some personality changes which is very tough. He is such a sweet boy.

On a postive note this is Nate's last day of work until January 2. Yeah!!!